April 9, 2007
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AUTISM
This is Autism awareness month. Autism is a big part of our lives.There are times that I HATE AUTISM!!!! The main reason is watching what it has done to Elisa. I am going to be very honest in this post. Things have not been good with Elisa for awhile. She is struggling a lot. It is hard watching someone you love having such a hard time.
There is not much help for people Elisa's age with autism. You have to fight to even get a hospital to take her. People at our church are learning about this as many are helping us and when they hear anything about it they will try to let me know.
There needs to be services for older children with autism. We have been going through a nightmare lately and I want to wake up. I have question God a lot about this,there is times He seems so silent and we wonder if He is there. Then we remenber HE NEVERE LEAVES US AND HIS GRACE IS SUFFICIENT!!!
I cry a lot anymore--sometimes it feels like I am loosing Elisa to autism.
Autism has change our lives.
Comments (14)
I'm glad you are being honest about this, because I have a close friend that has a child with severe autism and it's the same with her... she is beside herself and even tells me that she is jealous sometimes because Phillip seems so much more normal even though he has Asperger's... my heart goes out to you and others who have this struggle with their children's condition... it's not right and it's not fair that our children have endure this.
Then again, we are supposed to trust and have faith that God is in control and that there is a reason for this... doesn't seem possible, but there is a reason... as reason not yet revealed perhaps...
We have to trust... in the meantime, there has to be support in your area for Autism and if not then you need to contact one of the agencies online and find out why and how can there be a support group or services provided... it's your right... it's Elisa's right...
You need to read Dr. Deb's article in our magazine on Autism... she has many links to agencies and help...
http://www.heartbeatthemagazine.com and look for her health and wellbeing page in the table of contents....
Love you lady... we are praying ... hang in there... I know that there will be a break soon!!
Hugs, Connie
Thank you for being honest here and letting us hear your heart cry. I will continue to lift up your weary arms and place a rock under your feet, just as they did for Moses. Cling to those words you wrote that He NEVER leaves us and His grace IS sufficient!
Keep pressing in to Him!!!
Debbie
Thanks for sharing your deep-down feelings with us today. In our area, there is a large church that has a huge program for children with special needs and autism is one of their "specialties". Is it possible that there would be a group like this in your area? This would give you such a support system if you could have other people to share these feelings with and truly KNOW you are not alone.
RYC - Are there others at your church who have children with autism?
I'm on your new red team, and will hold your family up in prayer as well.
What type of church services do you have in mind for your daughter- out of curiousity? How old is she? My daughter (14) frequently is one of the "helpers" for our church's children's ministry (and that has helped her a lot, because she had problems sitting through the regular services... and it made her feel valuable to help out with the younger children. It has helped her, but I don't know how your church handles their children's departments).
Sorry- that has to be really hard. I had forgotten that she was that age- I was thinking more like a younger teen. I'll be praying for you and her!
Your words remind me of Abraham ....walking up the mountain with his son he loved so much. He was going to make a sacrifice as was commanded. But he only had his son helping carry his own wood. But in God's time he showed him the plan , knowing the trust abraham had in him. This may be different in many ways for you. I understand... But for sure We do trust God and obey him and then wait for his time.... that is the hard part. I wish you comfort and some measure of peace today. May God cover you with love.
Hey girl...I got your email. I'm sorry.......
I know sometimes God seems like He just isn't there but nvr forget He is always there and there is a light at the end of this awful tunnel and He is with you. I don't know what His plans are and I wish I could tell you but please know He will never give up on you and your family. He sees what you go through day after day. I wish I could say why this is all happening...I wish I had answers for you. Know that you do have people who care and people who pray and I pray that things will all come together and I pray that what is best for Elisa will come to be. I pray the Lord give you and Mike strength when you just feel like you have no more left to you...I pray He encourages you when you feel like your ready to give up...I pray He gives you His peace when the world is crashing in on you.....
Lot's of love to you today
Trina...
I don't have words or answers but you are in my thoughts and prayers...I am happy to connect with you and pray that the Lord will bring you wisdom and peace in the midst of this difficult time...
GBY-!
-Natty
May I ask what happens that lands Elisa in the hospital? I am just learning about autism. I hope she is doing better.
Blessings,
Jackie
Just read Connie's blog and wanted to drop by and encourage you in the Lord. By the way, go ahead and yell at God -- trust me, He can take it!
Have a blessed day...
Hugs!
HEY THERE TRINA DARLING, IT'S ROBIN.....I AM SO SORRY YOU HAVE GONE THRU ALL UR TRAGEDY.. I HAD HOPED U WERE ABLE TO FIND HELP FOR ELISA.I WOULD LOVE FOR YOU TO CALL ME. MESSAGE ME WHEN U CAN AND SEND ME UR ADDRESS AND I WILL SEND MY NUMBER OK.. AND I WILL SEND ELISA A CARD IN THE MAIL..MY SON IS MENTALLY CHALLENGED.HE DOESNT LIVE WITH ME THOUGH HE LIVES WITH MY EX HUSBAND.WE COULD EVEN EXCHANGE NUMBERS SO WE CAN TALK I CAN TALK AFTER 7 AND FREE ON WEEKENDS.LET ME KNOW AND IM ALWAYS HERE FOR YOU TO TALK OK...I WILL PRAY FOR YOU..AND PUT YOU ON MY PRAYER WARRIOR LIST AT CHURCH..LOVE YOU GIRL AND GOD BLESS HE LOVES YOU AND IS WATCHING OVER YOU..STAY STRONG!!!...ROBIN
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