Dear Editor,
We are parents of a 20 year old daughter who has multiple disabilities the main one being Autism.
I am writing this to inform you about how hard it has been for us to get the services we need to help her thrive in this world. Right now she merely exists. You hear about all the help that is out there but no one mentions that it is mainly for the younger children or that when they reach 21 they age out of the system.
Our daughter has been hospitalized 7 times in a year and each one has been a nightmare. She has been turned down by several hospitals because of her disabilities and had to spend nights in Er’s waiting for a bed.
She most recently was turned down because her IQ was too low. We feel some of the hospitals stays could have been avoided if the services she is legally entitled to was supplied. It has been a constant battle getting the needed services for her. At the time I am writing this she is in the hospital once again. There needs to be places in our county that could handle people like our daughter. At this time we are trying to receive funding for services and the provision of services that has been promise and by law she should be receiving..
My husband works two jobs and we are not asking for a hand out just what our daughter is entitled to by law.
People’s disabilities do not go away because they turn 21 so why should the services?
Is there any families out there that has gone through this? It would be interesting to see how you dealt with this or how many of us are out there trying to fight the same fight.
Thanks,
Mike and Trina Anslow of Hatfield
Comments (7)
did you get a response to your letter?
thats good
how what services are you talking about? does she not get cap are you talking about cap. my son gets developmental therapy and community support,but he is on the waiting list for cap which means that once he gets cap he will be able to receive equipment to help him or say something in our house needs to be replaced that dangers the health of my son they would pay to replace that or to place stuff to help him in our house.
Great letter! Good for you! I hope somebody who is able to help stands up and takes notice! Jenn
I’m glad you got that in the paper. Maybe you’ll get some positive responses that will be able to help. Best wishes on it.
I read this via the email you sent me. Great write up!! I will be praying that it opens some much needed doors for you all. Lord knows you need it!
(((hugs))) Lorrie
Hi, Trina.. I agree: “People’s disabilities do not go away because they turn 21 so why should the services?”
I hope you get some useful responses.
Blessings,
Becca